Introduction
How to talk about autism: Words have a profound impact on our lives, influencing individuals in ways both positive and negative. A well-timed positive word can be life-changing, while a single negative comment can set someone back significantly.
Navigating the language around subjects like autism can be challenging, especially for those new to the topic. You may be aware that there are preferred phrases and words, but unsure of what they are. As a caring and thoughtful individual, you want to avoid saying the wrong thing and causing unintended offense.
This resource is designed to guide you through the language of autism, keeping two key principles in mind. Firstly, recognize that all autistic individuals are unique, each with their own preferences in terms of language. Secondly, engage in open and honest conversations with autistic individuals to understand their preferences.
Understanding the Diversity of Autism
Autism is a spectrum condition, manifesting in various forms and impacting lives differently. Each autistic person is a unique individual with distinctive strengths, weaknesses, likes, and dislikes. There is no one-size-fits-all characteristic of autism; each person’s experience is uniquely their own.
Autism signifies a different wiring of the brain and neurological system. While it is not a disease or disability, living in a world not designed for their cognitive processes can present challenges for autistic individuals. For instance, sensitivity to certain stimuli like sounds, lights, or smells may require adjustments in their environment.
I may not bear the weight of Autism, yet the burden I carry lies in the echoes of your treatment towards me.
Tyler Durdin
Dispelling Myths about Autism
False myths about autism abound, such as the assumption that all autistic individuals excel in math and technology. Autistic individuals, like anyone else, possess a range of strengths and abilities. Approach each encounter with an open mind, avoiding statements like, “You are nothing like my other autistic friend!”
‘Person-First’ vs. ‘Identity-First’ Language
A crucial aspect for autistic individuals is the distinction between person-first and identity-first language. Person-first language describes the person before the condition, while identity-first language prioritizes the condition. Respecting individual preferences in language is essential, akin to using preferred pronouns.
Choosing the Right Terminology
When discussing autism, opt for positive language that highlights an individual’s attributes. For instance, describe an autistic person as “gifted with autism,” shifting the focus to their positive qualities. Acknowledge the diversity within the autistic community by using terms like “on the autism spectrum.”
Language to Avoid
Avoid negative language like “suffers from autism,” as many autistic individuals do not perceive their condition as a source of suffering. Similarly, terms like “Autism Spectrum Disorder” may not resonate with everyone, as autism is not universally viewed as a disorder. Respect individual preferences and avoid labeling individuals based on perceived functionality.
Conclusion
The words we choose can shape perceptions and impact individuals. In discussing autism, it is crucial to be mindful of the language used, ensuring it aligns with the preferences and perspectives of autistic individuals. Approach conversations with openness, ask about language preferences, and respect the autonomy of each person’s self-expression. Autistic individuals generally appreciate having their autism viewed as a positive and integral part of themselves, rather than a hindrance or disease. Most importantly, listen to their preferences and offer the respect they deserve.
Source
- American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Publishing.
- Nicolaidis, C. (2012). Commentary: Descriptions of autism in autobiographies written by adults who have been diagnosed with autism or Asperger’s syndrome. Intellectual and Developmental Disabilities, 50(1), 89-100.
- Robertson, S. M. (2010). Neurodiversity, quality of life, and autistic adults: Shifting research and professional focuses onto real-life challenges. Disability Studies Quarterly, 30(1).
- Zurcher-Long, E. (2018). “Person-first” and “identity-first” language: Developing critical insights and understanding for working with autistic children. In K. Kumazaki (Ed.), Autism Spectrum Disorder in Children and Adolescents: Evidence-Based Assessment and Intervention in Schools (pp. 267-283). Springer.
- Zurcher-Long, E., & Brugha, T. (2016). Autistic Spectrum Disorders: The Impact on the Family. In A. N. Singh (Ed.), Handbook of Evidence-Based Practices in Intellectual and Developmental Disabilities (pp. 593-614). Springer.
- Zurcher-Long, E., & Kapp, S. K. (2015). Chapter 7: Understanding autism as an identity: Implications for the language we use. In A. N. Singh (Ed.), Handbook of Autism and Anxiety (pp. 103-120). Springer.
- Zurcher-Long, E., & Milton, D. (2014). Constructing Autism: A Social Phenomenology of a Diagnostic Category. In J. Leibowitz (Ed.), Perspectives on Disability (Vol. 2, pp. 19-41). Emerald Group Publishing Limited.